CHOP

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Parent panel

Today Chris and I were on our first parent panel. We were asked to come to a regional meeting that the State Dept of Ed sponsors for those who are service providers for children with hearing loss. There were people in the room from all over ...

Blog entry - diber - 06/24/2010 - 21:23 - 2 comments

Two Years!

Yesterday we went down to the children's hospital (CHOP) again for Ellis's two year evaluation and mapping. Today marks two years since his activation of his cochlear implant. He wears a Cochlear Freedom on his right ear. Ellis is ...

Blog entry - diber - 07/24/2009 - 13:28 - 3 comments

the end of an era and some reflections

A couple weeks ago we had our last speech therapy session at the children's hospital. We have been going every week since Ellis's CI was activated 21 months ago. He does get speech therapy, both group and privately, in school, but we had been going to ...

Blog entry - diber - 04/22/2009 - 21:59 - 5 comments

mapping on a snow day

Yesterday was such a dreary day! We woke up to a blanket of snow that eventually got soaked with rain, becoming a wretched blanket of slush. Since our weather was somewhere between snow and ice, I took Ellis to his audiology appointment via ...

Blog entry - diber - 01/29/2009 - 12:57 - 3 comments

Bright Eyes

See my boy's bright blue eyes? They're perfect. We had this confirmed today by an ophthamalogist. An appointment that I've been putting off for three years. When he was born deaf for no obvious reason (family history, illness, etc), there was ...

Blog entry - diber - 12/23/2008 - 20:29 - 1 comment

If I had a nickel

...for every Phillies Tshirt I saw today... Yay Phillies! I must admit, though, it didn't even occur to me to watch the game last night. I think I may have heard that it was going to be played on Wednesday, but it didn't really compute. I was too ...

Blog entry - diber - 10/30/2008 - 23:00 - 2 comments

Tuning and Fine tuning

We spent the afternoon at CHOP today. Ellis had his one year evaluation and mapping for his cochlear implant. The past few times he's been in the hearing booth, he's HATED it, like cried and crawled all over me. Today he was much better, and even ...

Blog entry - diber - 07/28/2008 - 22:20 - 3 comments

A Year Ago Today

Ellis's CI was activated . I hope to write more later. Email this post Thank you for your interest in spreading the word about Ellis Island. NOTE: We only request your email address so that the person you are ...

Blog entry - diber - 07/24/2008 - 08:49 - 3 comments

One Year

A year ago today was Ellis's CI surgery . It's been a busy year, and we're starting to find our pace with it. It's hard to think about it too much, though...the surgery, that is, so I won't. I can't believe it's been a year already. ...

Blog entry - diber - 07/02/2008 - 23:33 - 0 comments

Ears, letters, phonemes, school, etc

It's probably about time to do another update on how fantastic Ellis is *grin*. I was kind of on hiatus from all deaf blogging for a little while. The comments were starting to get too intense for me, which, to some extent, I allow to happen merely by ...

Blog entry - diber - 11/03/2007 - 22:06 - 14 comments

small, interesting moments

(I started this last thurs. better finish so I can get to other things) Today Ellis and I went to the children's hospital (chop) for his weekly speech therapy. I'd prefer that we not be going to a hospital for that as it reinforces the medical ...

Blog entry - diber - 09/18/2007 - 10:57 - 8 comments

and the following muggy evening

Do you know that part in Gone With the Wind where Scarlet cries "I will never go hungry again!!"? Sometimes I feel like that about summer. After surviving four and a half summers in New Orleans with hardly any air conditioning (we had one window unit ...

Blog entry - diber - 08/09/2007 - 21:44 - 7 comments

a park and a possibility

Yesterday we went to a picnic that CHOP sponsored for the families of kids with CI's. At first I was a little reluctant to go, since we seem to been Auditory-ville around here. Every time I go to parent events I feel like the weirdo who signs. But I ...

Blog entry - diber - 07/22/2007 - 18:11 - 9 comments

gettin' educated

This afternoon we rode the train into center city again to attend a seminar about educational issues for children with cochlear implants. It was helpful for me because it brought together a lot of the information that I knew sort of floating around my ...

Blog entry - diber - 07/17/2007 - 22:06 - 2 comments

cool new stuff

We went to the hospital today to pick up Ellis's external processor for his cochlear implant. It won't be activated it until next week. So we have a week to get used to it. I think he knows it's his cool new thing. Believe me, it's been on and off about ...

Blog entry - diber - 07/16/2007 - 22:29 - 3 comments

Wearing a lead vest

Chris, Ellis, and I left the house at 9 am this morning and drove down to the hospital for Ellis's scheduled 10am CT scan. We arrived on time, got checked in, and waited and waited and waited. I was already a little edgy, because for the CT scan they ...

Blog entry - diber - 06/13/2007 - 23:01 - 21 comments

In Santa Croce with no stroller

The feelings that welled up inside me upon the birth of my first child probably echo those of every other new parent. Boy, I sure hope I don't screw this up. All the emotions can be overwhelming: the joy, the trepidation. But then you get your ...

Blog entry - diber - 03/20/2007 - 22:44 - 4 comments

Val Day and the Love of Snow

Valentine's Day dawned wintry and blizzardy. Sleety snow misted around us, and a chilly wind found the spot between my scarf and coat collar. At 7.30 am I was trudging through snow in inadequate (yet my sturdiest) shoes with the umbrella stroller ...

Blog entry - diber - 02/16/2007 - 00:36 - 6 comments

This is my 1001st entry

I'm too tired to really write much tonight. I've got to go to bed. I just got back from the train. I was at CHOP (Children's Hosp. of Philly) this evening attending a parent's panel for cochlear implants. A few parents on the panel, a few in ...

Blog entry - diber - 11/17/2006 - 00:24 - 2 comments

Stripey ear molds and lighty chickens

We haven't had a doctor's visit in a couple of months, and man, I was gettin' complacent there. So we hauled off to see the audiologist today. Complete with arriving at the train station two minutes before the train and realizing that I forgot my cash ...

Blog entry - diber - 09/11/2006 - 22:13 - 0 comments

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